Wednesday, October 10, 2007

Emily's story


http://www.allergykids.com/index.php?id=12 please read Emily's story told by her parents , it is very touching , a parents worst nightmare, well certainly mine. As well at the bottom of the page you will find Sabrina's story , Sabrina's mother is a hero , she has lobbied for the safety of all anaphylactic children in schools across Ontario resulting in Sabrin's Law being passed, which ensures procedures are in place for all children with severe food allergies. She is also helping to pass law's throughout the rest of Canada as well as in the United States. A true hero who when faced with the loss of her child by again accidental exposure due to trace amounts of a food allergen in school decided to make changes. I am truly thankful.



I wanted to post this link to an eye opening story about Emily, who died at the age of 13 due to eating trace amounts of peanuts in a sandwich she had eaten many times before. It shows just how delicate this allergy is, trace amounts, you don't need to eat a peanut butter sandwich to have an anaphylactic reaction.


The reason I am mentioning this is because of my recent alarming concerns of the school my children attend purchasing baked goods to sell to the children under the false claim they are peanut-free, first all items I feed my child need to be free of nuts and peanuts and that includes trace amounts. Deaths occur because of accidental exposures, hidden dangers.


Emily's Story is a tragic yet perfect example to get that point across.


Now I don't blame anyone but the bakery for misleading these ladies who thought they were providing a safe product for the children. I have contacted the BBB to have this bakery remove there claim of safety. They admitted to me all of the concerns I had, they have and bake with tree nuts , as well as they say they are peanut free but don't guarantee anything, and worst compared a nut allergy to a milk intolerance not at all in the same league.There are many dedicated bakeries that go to great lengths to be safe for children like mine, like http://www.frostines.com/


and http://www.tickleyourtummy.ca/ peanut/nut free is a claim that comes with serious consequences if there is a slightest mistake.


I am struggling with my confidence as far as safety for Sophie, it pains me to send her to school these past couple of weeks,I need to trust everyone around her to watch out for her safety.


If I can enlighten a few people about the fragility of this allergy then we are all ahead.

5 comments:

restyled home said...

Thanks for the link...it sounds like you are really struggling with this issue. You must hate sending her off to the "safety" of those responsible for her care during the school day. I really feel for you. There is no easy answer...

I hope you can find a happy medium, where you can breathe a little easier.

All the best,
Linda

onelittlemustardseed said...

Kris, your pain & worry jump off the page...I really do ache for you...

Like you, I am overly protective of my kids and I struggle with letting them do new things that do not involve me watching over them..I can't imagine how I would cope knowing I had to depend on others to keep my child safe and I admire your strength!

However, don't forget you are teaching so many people to take this issue very seriously...I was actually offended watching the view the other day when Elizabeth Hasselbeck made a flip comment about how schools don't allow peanut butter...I was thinking of you and Sohpie when she said that and sent off a comment to them about what she said...

I wouldn't have noticed if you hadn't educated me so much...keep writing about it because you are making a difference!

((hugs))

chriskauf said...

That is so nice, that you wrote to the view Wendy , that Elisabeth drives me crazy with her constant ignorant comments, I have written many times as well.
I am feeling much much better about the situation, I spoke with our principal and she wants to also make sure all the kids are safe, perhaps having a safe treat ,especially safe for those that cannot have nuts or peanuts. I am very lucky,to have a doctor who's daughter shares my daughter's allergy, so he is very helpful and compassionate.
I am feeling more confident tonight,as the year goes on I will gain more of a peace as far as this issue is conerned.

andrea danielle said...

I am so sorry that you have to have this heavy concern. We have to worry so much anyways, but this just adds to the list. one of the schools down here has banned any kids from bringing peanut butter sandwiches, which I guess is a step in the right direction. I know it only takes a minute amount.

Michelle said...

I have an allergy to strawberries, that is just as life-threatening, although easier to watch out for than peanuts. I feel for you and your concern for your child. I agree with the previous comments, that you have educated us with your post and the more people become aware of the seriousness of the condition, the better care can be taken for our children especially.